Sunday, 28 February 2010
Two camps for young carers are currently open for applications:
Gamarada Retreat for 18-25 year olds
June 28 - July 1, 2010
Applications need to be in by Friday March 12
It is described as a wellbeing retreat for adult young carers aged 18-25 years .....a great oppotunity to relax and take part in some fun activities with other young adult carers, (and) to share your stories and learn how others balance caring with work, study and life in general
Any young carer aged 18-25 from anywhere in NSW is eligible to apply.
Camp One Mile Beach
Open to all young carers aged 8-12 years old who live in the Hunter or New England regions.
Friday May 7 - Sunday May 9, 2010
One Mile Beach Holiday Park, Anna Bay
Cost: Free - includes accomodation, all meals and activities.
To Apply: contact Kathy Jones at EDuCARE on 02 4921 4895
Click here for details of these events from the Young Carers website
Many siblings of people with Down syndrome fit the criteria for accessing support through Young Carers: www.youngcarersnsw.asn.au
The Carer Representation Program provides training, information and support to carers to enable them to act as Carer Representatives, representing Carers NSW and the wider body of carers.
The aim of the Carer Representation Program is to inform a range of professionals and the broader community of carers’ perspectives.
Carer Representatives activities include:
- participation on committees, advisory groups etc;
- guest speaking;
- media interviews;
- focus groups.
Carers NSW is seeking the involvement of carers from diverse communities and backgrounds, with carers throughout metropolitan, regional and rural NSW invited to join the Carer Representation Program.
Service providers are encouraged to inform carers of this opportunity.
No experience is required, but an interest in getting the carers’ perspective heard is a must.
For more information please contact Alison Parkinson. Ph (02) 9280 4744 or email firstname.lastname@example.org
Saturday, 27 February 2010
Find out more about our research at free online events
We are launching a series of online events presenting the current research activities of Down Syndrome Education International and our partners.
These live events are free to access online and by telephone for families, professionals and scientists worldwide.
Over the past 30 years, developmental and educational research (conducted by us and others) has increased what is known about the learning difficulties experienced by people with Down syndrome. This research has improved teaching techniques and transformed education for many thousands of young people with Down syndrome today. However, much remains to do. Many important questions remain unanswered and many specific interventions have not been sufficiently evaluated.
Our series of online events will present our current research activities and discuss how we are working to answer critical questions about development and education for children with Down syndrome.
Science fact and fiction - What research has delivered for people with Down syndrome and what it might deliver in the future?
Friday, 26 March 2010 (8:00 pm Sydney)
Research progress at Down Syndrome Education International – current projects and future priorities.
Friday, 23 April 2010 (6:00 pm Sydney)
Is autism being over-diagnosed? What do we learn from early autism screening?
Friday, 14 May 2010 (6:00 pm Sydney)
Can we improve children's problem solving skills? - pilot data and future plans.
Friday, 21 May 2010 (6:00 pm Sydney)
What are we learning about the links between signing and speaking?
Friday, 28 May 2010 (6:00 pm Sydney)
Developing and evaluating a classroom reading and language intervention - progress one year on.
Friday, 11 June 2010 (18:00 Sydney)
Can we improve children's working memory skills? - results of a small training study and next steps.
Friday, 18 June 2010 (6:00 pm Sydney)
Presenters will include Prof Sue Buckley, Stephanie Bennett and Dr Kelly Burgoyne.
Note that each event is being presented on two occasions - one of them (given here) kindly timed for Australasia and Asia. Families might well want to pass this news on to their child's school and/or therapists.
Visit DownsEd for more information about each event, and to register, and for more about the Sue Buckley Research Fund.
Monday 22 March 2010
Register online at www.family-advocacy.com or contact Family Advocacy for a registration form: email email@example.com or phone (02) 9869 0866
Family Advocacy also has several “Moving Out” workshops scheduled during March - check the website for details.
What is WROK?
WROK is a 5 day camp run in the April school holidays each year for teenagers (12-21) with physical and/or intellectual disabilities and disorders.
Where/when does WROK happen?
Blue Gum Lodge in Springwood, NSW which is in the beautiful Lower Blue Mountains region.
7-11 April 2010
Who runs WROK ?
WROK is an Anglican Youthworks camp run by dedicated volunteer leaders many of whom have backgrounds in teaching (general and special education). Contact the Team for some profiles.
For more information and to locate application forms, visit the very cool WROK website: www.wrokcamp.com and read the FAQ pages.
What about younger kids?
This year for the first time WROK is inviting 8 - 12 year olds to experience just a taste of WROK! camp. Saturday 10th April, 2010 will be a special day for our potential younger campers. It will be a fun filled day and parents can either choose to stay for the day,watch the fun and relax in our special cafe. Or if you choose to leave your camper with us and explore the beautiful Blue Mountains.
You can contact the WROK team directly by email: firstname.lastname@example.org
Friday, 26 February 2010
This documentary gives us a clear insight into what it feels like to have Down syndrome in 21st century Australia. (Voice, March 2010)
Hayden Cremorne Orpheum Picture Palace
380 Military Road, Cremorne
Monday, 22 March, 6.00 pm
Liz Collins and Paul Matley will be present
Supported by a screening of the 2009 Tropfest-Best Film
Be My Brother (starring Gerard O'Dwyer)
Book online here, or phone Down Syndrome NSW, on 9841 4444
(proceeds to Down Syndrome NSW)
11am to 3pm
Queens Park cricket fields 20 and 23, Darley Rd, Queens Park
Parking – available in Darley Rd – 4 hour parking limit
Ph. 02 8302 6033
Mob. 0400 431 776
- Team Trainer
- Team Manager
- Gear Steward
Friday 26th March 2010, 5.30pm - 7pm
Phone: (02) 4725 6000 Email: email@example.com
Thursday, 25 February 2010
The new services in NSW will be provided by:
- The Disability Trust, North Wollongong and Milton
- Sylvanvale Foundation, Kareela
- Ability Options Ltd, Goulburn
- Barnardos Australia, Cranebrook
Contact your local ADHC office for information about vacancies and applications for places.
These conditions occur more commonly amongst children with Down Syndrome and BGK is well informed about Down syndrome. To learn about the support and information BGK offers, visit the website: www.bgk.org.au
Wednesday, 24 February 2010
Down Syndrome Australia Network, AFL Foundation,and the 2010 AFL Umpires Roadshow present
ACHIEVING GOALS ACTIVELY - promoting the benefits of physical activity, healthy lifestyle and fun
Warm up and aerobic exercises, ball skills, stretching, Umpire skills
Free one-off sessions held nationally for all people with Down syndrome and their siblings. (School age & above)
NSW dates and locations for 2010
4pm to 5pm Mon 15 March
Gosford Area (details of exact location TBC)
4pm to 5pm Tue 16 March
Newcastle Area (details of exact location TBC)
4pm to 5pm Tue 16 March
Wagga Wagga, Maher Oval
To RSVP or for more info, please email firstname.lastname@example.org or phone 9841 4444
She is calling for expressions of interest from parents of primary school aged children, to participate in a study of the role of parent's in supporting their child with Down syndrome in the development of early mathematical concepts.
Dr Rhonda Faragher will supervise the project.
Contact email@example.com for a response form, or contact Ms Shellshear directly, at Theresa.Shellshear@acu.edu.au or on 0437 867 628 for further information.
Artworks created during the workshops are now on public exhibition, and available for purchase:
24 February – 14 March 2010
Newcastle Art Space, 246 Parry Street
Bookings: Brooke Cross – 0407 769 903
Tuesday, 23 February 2010
Down Syndrome Australia today called on Facebook to immediately take down a site which advocates using children with Down syndrome as target practice and offer all people with Down syndrome and their families a formal apology.
Spokesperson for Down Syndrome Australia, Kirsten Deane, said the site was offensive and incited hatred of people with Down syndrome.
“Unfortunately this site represents the extreme end of the kind of prejudice and discrimination people with Down syndrome experience every day,” Ms Deane said.
“These kinds of attitudes have no place in contemporary Australia.
“We believe Facebook has some responsibility in continuing to host a group that is promoting not just hatred but acts of violence.
“People will want to laugh this off as a bit of a joke but it is no laughing matter for people with Down syndrome and their families. Reinforcing prejudice and negative attitudes just makes their lives that much harder every day.”
Ms Deane said that while the site had its origins in Italy, the global nature of communications and the international nature of Facebook meant its impact was still felt locally.
“This affects every person with Down syndrome and their families. The thinking behind it is the reason people with Down syndrome so often find difficult to find a place in the community.”
For more information please contact Catherine McAlpine on 0419 530 524
ABC News has published an international report about the reaction to the site in Italy:
Outrage over anti-Down syndrome site
Saturday, 20 February 2010
The rights of the state's 750,000 carers would be enshrined in legislation for the first time if the Coalition wins office at the state election next year, forcing government agencies to give carers more help and support.
An act similar to a British law would legislate that government agencies undertake individual assessments of carers' physical and psychological needs and that government departments take carers' needs into account.
Click here for the full text of the SMH report.
Friday, 19 February 2010
Participants in the research will be interviewed either in person, over the phone or through instant messaging via the internet. The interviews will run for no longer than one hour. These interviews need to take place before Friday 5 March 2010.
This research project has been approved by the UTS Human Research Ethics Committee and participants should be aware that all responses given in their interview are confidential.
For more information contact Ryan Sherry. Ph: 02 9514 5101 or email; firstname.lastname@example.org
For information on the first study, being conducted by the University of Technology Sydney for the Australian Sports Commission, announced recently, click here.
Thursday, 18 February 2010
Wednesday, 17 February 2010
As you enter our Enchanted Forest, you’ll be stepping into a world of glamour, entertainment and magic. Guests will experience exquisite food and wine, and fundraising fun for all.
There will be live and silent auctions, the always popular major raffle and a few other magical surprises, all hosted magnificently by the incomparable Adam Spencer.
Please join us and help raise much needed funds for our 2010 projects: the new Kids For Life Down Syndrome Resource Centre and the Kids For Life Sydney Children’s Hospital Epilepsy Program. Children affected with either Epilepsy or Down Syndrome across NSW desperately need a place to turn to, and all too often they’re not given access to the professional care and comfort they require. Kids For Life is committed to making a difference, and giving these kids and their families the respite they deserve.
So round up your friends, family and work colleagues, and buy your tickets today. As always, this will be a sell-out event.
We look forward to seeing you there,
The Team at Kids for Life
Date: Sat 27 March 2010, 6pm - 1am
Venue: Hordern Pavilion, Moore Park, Sydney
Dress: ‘Enchantingly’ in black tie
Tickets: $199 each, $1,990 table of ten
After: Kit & kaboodle from 1am
(free entry with ball ticket, transport from the Hordern provided)
RSVP: Fri 12 March 2010
Click here for further details and to purchase tickets
Click here to download a flyer that you can forward to friends
If for some reason you can’t make the night but would still like to help support our causes, simply head to our website to make a donation: www.kidsforlife.com.au
(Remember, all donations over $2 are tax deductible).
Click here for information about sponsorship opportunities
Saturday, 13 February 2010
The NSW Guardianship Tribunal is established under the Guardianship Act 1987. Its members are appointed by the Governor.
The Tribunal’s role is to hear applications to appoint guardians and financial managers for individuals who, by virtue of a decision making disability, are unable to manage their person or their finances. The Tribunal may review enduring powers of attorney and the appointment of an enduring guardian. The Tribunal may also provide consents to medical treatment for people incapable of consenting for themselves. The Tribunal is constituted by panels consisting of between one and five members.
Expressions of interest are called for from prospective
- legal members
- professional members
- community members
Closing Date: Friday 26 February 2010.
Thursday, 11 February 2010
This week on Four Corners, “Breaking Point”. The heart-rending story that tells what it’s like to live with a disability, or to care for someone who is disabled, in Australia today. Reporter Wendy Carlisle meets the families the nation has neglected.
The system of assistance for people with a disability in Australia is broken. Carers know it, charitable organisations know it and so do the governments. Now the federal government says something must be done. It’s holding an Inquiry, with the intention of creating a new and fairer system. It’s even considering a national disability insurance scheme. But will the system be reformed in time to save the families now at breaking point?
In Sydney, 65 year old Dick Jones showers his profoundly disabled son Robbie. It’s a task he does willingly but at his age he doesn’t know how long he can keep giving his son the care he needs. He’s been told the only way to get more help would be to abandon his child and leave him in the care of the state.
Amanda Royle’s 9 year old daughter Rosie is deaf and blind, cannot speak, and is intellectually disabled. On her own with two other children to look after, Amanda is in desperate need of assistance that the system cannot provide.
The Nguyen family has twin boys with severe autism. At thirteen they are intellectually disabled and need to wear nappies. Three years ago one of the twins was given a place in a special school. For the family it was a god-send. Now the funds have dried up and the school is threatened with closure.
These families are desperate and they are not alone. Across Australia it’s estimated that there are 1.5 million people with a severe disability. Only a small proportion of them receive any direct physical care from government or charities. The vast majority rely on family and friends to help them survive.
“It doesn’t matter where you look across the sector, across the states of Australia, the system is broken.” Bruce Bonyhady, Independent Panel Member, Productivity Commission Inquiry into a National Disability Support Scheme
The reasons for this situation aren’t hard to find. Thirty years ago governments radically reformed the system of disability care in Australia. They promised to set people free from institutions, and at the same time they promised a major boost in funding so that people with disabilities could be supported to live at home or in community settings. Instead those services have been starved of funds leaving carers, many whom are now in their 60s, 70s, and 80s, to carry the burden. It’s a terrible situation as Dick Jones told Four Corners:
“We were told... the only option you have, is when you are in a wooden box , that’s probably the only time that Rob [his adult son] will get any accommodation.”
The Federal Government accepts the system needs reform and has begun to allocate extra funds for services and carers.
Most significantly, the Federal Government has set up a Productivity Commission Inquiry to recommend systematic reform and the establishment of a comprehensive National Disability Support Scheme. The problem is if the Inquiry recommends a new scheme and the Federal Government agrees to act, even the best estimates suggest real change in Australia would take five to seven years to implement.
“There’ll obviously I think be more meat on the bone for a scheme towards the end of a second term. When the scheme could finally be implemented, I don’t know.” Bill Shorten: Parliamentary Secretary for Disabilities.
For thousands of people this is simply too long to wait. Four Corners reveals the growing number of people who are packing their bags and going to live in countries where the support system is better resourced. These people are being called “disability refugees”. Reporter Wendy Carlisle goes with one young mother to Britain as she investigates the possibility of moving her family back there so her daughter could be better cared for.
While the Government recognises the need for fundamental reform, many families of the disabled are at ‘breaking point’.
BREAKING POINT goes to air on the 15th February at 8.30 pm on ABC1. It is repeated on the 16th February at 11.35pm.
It will also be available online. http://abc.net.au/4corners
A public online forum with some of the people from the story will follow the screening on Monday night starting at 9.30pm AEDST. An invitation is extended to all to join in.
Tuesday, 9 February 2010
2 Twin Sisters is about ... well two twin sisters, one of whom has Down syndrome. The sisters are 58, and Elizabeth (Lizzie) also has Alzheimer's disease. She lives with her twin sister, Greek Diva who is her primary carer, and the blogger. She introduces their blog like this:
I have a story to tell. This blog will be about my journey through life with my twin sister Elizabeth who has Down Syndrome and now struggles with Dementia of the Alzheimer's Type common to Down Syndrome adults her age. My intent is to inform family and friends, educate others in similar situations, and learn to help myself as readers share posts and comments.
In and early post she says:
I have no desire whatsoever to appear a martyr in my efforts to provide the best possible life for Elizabeth, so we’ll skip the kudos. I am hoping someone out there will offer me encouragement and if you read something you have experienced, please share so I know I am not alone in all of this.
A break from blogging early in 2009 ended with this wry comment:
It’s been a long time since I have blogged about my sister and that is not because she hasn’t provided me with material.
Friday, 5 February 2010
All events will held at
Orange Ex-Services Club
231 –243 Anson Street,
Registrations close 8th March 2010
Click here for a detailed flyer and registration form for all of the Orange events
All enquiries and registration: contact Siena O’Brien at email@example.com or phone 9841 4411
- Program -
"Update on Down syndrome"
This workshop will be relevant to professionals working to support people with Down syndrome in residential, respite, recreation and employment services, and to anyone who works closely with people who have Down syndrome, wishing to update their knowledge.
Workshop content: Communication, health and behaviour
Thursday 11th March 2010
9:30am - 3:00pm
Jill O'Connor, Down Syndrome NSW
$99 per person (DS NSW members)
$132 per person (Non members)
Includes GST, Morning tea, light lunch
"Playing to Their Strengths"
A workshop for teachers and school personnel working with students who have Down syndrome
Information and resources from the latest research and practice
Friday 12th March 2010
9:30am - 3:00pm
Judy Davidson, Parent Support Manager, and Jill O’Connor, Down Syndrome NSW
$99 per person (DS NSW members)
$132 per person (Non members)
"Communication and Behaviour"
A workshop for parents and family carers of a child with Down syndrome aged 5 - 12 yrs
Saturday 13th March 2010
10:00am - 3:00pm
Judy Davidson, Parent Support Manager, Down Syndrome NSW
Cost: $22 per person (adult siblings welcome at no charge)
Parents' seminars and workshops are funded by NSW Health, under the NSW Carers Program, and by Down Syndrome NSW, as a component of the “All the Way” project, 2007 – 2010
Click here for a detailed flyer and registration form for all of the Orange events
All enquiries and registration: contact Siena O’Brien on firstname.lastname@example.org or phone 9841 4411
Thursday, 4 February 2010
Wednesday, 3 February 2010
Who is My Time for?
It is for parents and/or carers of pre-schoolers, with a disability or chronic medical condition and their siblings.
What does My Time offer you?
My Time gives parents the chance to socialize and share ideas with others who understand the rewards and intensity of the caring role. Parents can meet with people in similar circumstances to have fun, hear from others and find out about available community support & research-based parenting information.
What is available for my children?
A play helper and volunteers will be provided to ensure that your children are kept entertained with activities such as singing/music therapy, drawing, playing games and various other activities.
Morning tea will be provided
When: 9.30 – 11.30 a.m. 15th February 2010, then every second Monday
Where: The Drill Hall, (end of), Cross Street Mosman. (Off Bradley’s Head Road)
To register before 8th February, please contact:
Adele Elliott, Group Facilitator,
Tel: 02-9975-8410 or e-mail email@example.com
Australian research - Sport and Active Recreation: Disability Participation & Non Participation Study
We would like to know whether or not you participate in sport and active recreation and the reasons for your participation. The findings will be used to review current approaches to sport and recreation and to improve access provisions.
To be part of a research study being conducted by the University of Technology Sydney for the Australian Sports Commission on the sport and active recreation of people with disabilities click on the link below:
Your participation in this study is highly valued whether you are participant or not. We are as interested in the reasons for non participation and the constraints to participation that people with disabilities face.
Those fully completing the questionnaire have the opportunity to go into a guessing competition to win 1 of 5 $600 vouchers for Inclusive Sport & Recreation Equipment. For further information on the equipment available, please visit http://www.teaching.com.au/
ALTERNATIVE FORMATS or FURTHER INFORMATION
If you require an alternative format (large print, E-text, Easy English) or would like to complete this questionnaire by phone or want further information, please contact the project manager: Ryan Sherry on (02) 9514 5101 or by email firstname.lastname@example.org
All responses are anonymous and confidential. The project has been approved by the UTS Human Research Ethics Committee (Ref No. 2009-242P) and any ethical issues arising from the research can be discussed with the UTS Research Ethics Manager, Ms Susanna Gorman, on Ph: 02 9514-1279.
Tuesday, 2 February 2010
is an interesting and thoughtful blog, started in mid 2009, and planned to finish in July 2010.
A permanent link is now in the blogroll in the right hand column here, or you can subscribe to make regular reading easier.
The presentations of the speakers during the In Control Forum held on Tuesday 24th of November 2009 are also available from the Family Advocacy website.
Monday, 1 February 2010
Two adult holiday camps are currently scheduled for May and for September 2010 (at Yarramundi). Registrations for the May event close on 16th April.
Click here for a flyer.
For further details and registration forms, contact email@example.com or phone 4776 1397, or visit www.lutanda.com.au
The website has been developed specifically for the not-for-profit disability and community care sector and should prove to be a great asset in addressing those harder to tackle candidate needs your organisation may have in the short to long term.
The service is part of the National Workforce Project initiated by National Disability Services and Ageing, Disability and Home Care (NSW Dept Human Services) and focused on attracting more talent to the disability and community care sector in NSW.
Here is a brief overview what carecareers.com.au has to offer you:
- Centralised job board to advertise your current career opportunities
- Talent pool to search for talent prior to paying to advertise a vacancy elsewhere – we hope to make that need a very rare one
- 1300 637 637 number for organisation and candidate support
- Talent Advisors to assist you in developing a best practice strategy to attract the “best fit” professionals
- Forums for professionals to discuss issues relevant to work in the sector
- Blogs providing an opportunity to exchange ideas with peers and industry champions
- FREE service until August 2010!
Contact: Ben Cox
PO Box 601, Broadway 2007
ph 1300 637 637